Hi, my name is Laura, I am 30 years old. I am diagnosed with endometriosis stage 3 since October 2020, had excision surgery in March 2021 where they immediately placed an IUD in to help symptom control. Between diagnosis and excision surgery, I had once a month GnRH agonist injections to help with my pain. After a few flare ups post surgery I was diagnosed begin 2022 January or February with adenomyosis via hysteroscopy. I had terrible periods ny whole life long and pre diagnosis of endo I had brown spotting for 6 months continuously, with more but normal coloured discharge, pain with sex and pain going to toilet whether it was passing urine or stool. Since the hysteroscopy I have also been put on twice a day the minipil for symptom control. Since end July this year I had a massive flare up where they were suspecting ovarian torsion but ruled out after an ultrasound. Just seen multiple (clear) cysts around my left ovary but the IUD was limiting the view to see endometriosis and could not rule out a proper flare up the doctor said. However, I am now already since 23rd December in extreme typical flare up pain.bi had multiple flare ups since July this years. I have an appointment with the gynecologist on 19th January. I have not seen him since the hysteroscopy as he is in a different nhs hospital trudt than the one is nearby my home. I was wondering how common is reoccurrence of endometriosis this soon of excision surgery cause my gynecologist on the previous appointment with the hysteroscopy, said it was impossible this soon post surgery. But I have pain going toilet again, at times pain with sex. Typical stabbing, squeezing, pulling lower abdomen/pelvic pain. I have been put on co-dydramol by my gp to cover the wait till the appointment but I am nurse myself on ITU and have been unable to work as the pain is making me feel light headed and nauseous most of the time. 111 advice line said I am doing everything right. I am avoiding hot water bottles at the moment as I have a hot water bottle rash last few days. I am desperate and hopeless and anxious and so many things are going through my head and I really can do with advice from an expert instead of seeing so many online endometriosis/adenomyosis posts on social media. Please, help? Kindest wishes, Laura
ENDOubt Team
The symptoms you've described are distressing, and it's understandable that you're seeking guidance and support. It's important to emphasize that the advice and care of your doctor are essential in addressing your specific medical needs. The recurrence of endometriosis symptoms after excision surgery is possible, although the timing and severity of reoccurrence can vary among individuals and can also depend on the type of performed surgery. Given the severity of your symptoms and the impact on your daily life, it's crucial to prioritize your health and well-being. We advise seeking a specialist consultation with a gynecologist who has expertise in endometriosis and adenomyosis. It is essential for a comprehensive assessment and tailored management plan. It's essential to communicate the significant impact of your symptoms to your doctor and to seek the care and support you need to address the challenges you're facing and probably your doctor may need to assess whether adjustments of your current treatment plan are needed based on your symptoms. Those 2 pathologies are difficult to diagnose and even more to treat. The more information you will be able to give to your healthcare provider about your symptoms, the better the treatment you will be able to find together. Remember that you are the one receiving the treatment and it has to suit your needs.
If you have any urgent or severe symptoms, please seek immediate medical attention.
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